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The Eye Care Circle: Did you know?
Elise Héon, M.D., Ph.D., The Hospital for Sick Children, University of Toronto
Summary: When living with retinitis pigmentosa (RP), it’s important to make sure you are seeing the right eye care specialists to get the best possible support and information you deserve. This talk explains who you should be seeing and why. As well, it will give guidelines on what ongoing care and referrals are available to you (i.e. genetic testing, counseling, low vision specialists, research trials). Lastly, an update will be provided on the expansion of the FFB Patient Registry and why it’s important to be a part of it.
LISTEN TO PRESENTATION
Download Q&A from Dr. Heon's talk
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Nutrition and Retinal Degeneration
Yves Sauvé, Ph.D., University of Alberta
Summary: The media and the internet are inundated with reports on nutrition to prevent, slow down and treat various retinal degenerations. While nutritional therapies could benefit some patients, it could also harm others. This talk will separate fact from fiction, in terms of what nutritional therapies will benefit whom.
LISTEN TO PRESENTATION
Download Q&A from Dr. Sauve's talk
For the take home sheet, "Healthy Eating", please click here.
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Your Vision, Our Vision
Valerie Wallace, Ph.D., Ottawa Hospital Research Institute, Ottawa General Hospital
Summary: Research to fight blindness has never been so promising! Opportunities to prevent vision loss, and restore sight, are unfolding before our eyes, but it is just the beginning and there is still a lot of work to be done. This presentation will give a ‘crystal ball’ look at future vision research, and what the FFB is doing to make your vision, and our vision, a reality.
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Download speaker's presentation
EDMONTON AUDIO FILES
Who are you seeing? – The Right Eye Care Right Now
Ian MacDonald, M.D. University of Alberta, Department of Ophthalmology
Summary: When living with RP, it’s important to make sure you are seeing the right eye care specialists to get the best possible support and information you deserve. This talk explains who you should be seeing and why. As well, it will give guidelines on what ongoing care and referrals are available to you (i.e. genetic testing, counseling, low vision specialists, research trials). Lastly, an update will be provided on the expansion of the FFB Patient Registry and why it’s important to be a part of it.
LISTEN TO PRESENTATION
Nutrition and Retinal Degeneration
Yves Sauve, Ph.D., University of Alberta
Summary: The media and the internet are inundated with reports on nutrition to prevent, slow down and treat various retinal degenerations. While nutritional therapies could benefit some patients, it could also harm others. This talk will separate fact from fiction, in terms of what nutritional therapies will benefit whom.
LISTEN TO PRESENTATION
- Download Q&A from Dr. Sauve's talk.
- For the take home sheet, "Health Eating", please click here.
- Download pamphlet, "Eye on Nutrition".
The Latest Discoveries in Retinal Research
Matt Tennant, M.D., University of Alberta; Ted Allison, Ph. D., University of Alberta; Bill Stell, Ph.D., M.D., Director, FFB Research Programs; University of Calgary
Summary: Discoveries in RP research are happening each year, all around the world. This talk will give the latest update on: 1) gene therapy - LCA Phase II results; 2) pharmaceutical therapy (neurotrophic agents) – RP Phase II results; 3) stem cell research outlook; and 4) electronic prosthetic (artificial retina) trial results.
LISTEN TO:
- Gene Therapy Update by Dr. Matt Tennant
- Stem Cell Update by Dr. Ted Allison
- Pharmaceutical Update by Dr. Ian MacDonald
- Electronic Prosthesis Update by Dr. Bill Stell
Inspiring Keynote Speaker - Norma Bastidas
Summary: Norma is the second person in history to run seven of the planet's most unforgiving environments on seven separate continents in one year. Dubbed the 777 Run for Sight, Norma leveraged her incredible journey to help raise money for the Foundation Fighting Blindness; and awareness of her son's battle with vision loss. She believes in being a strong model for both her sons, proving that even the most difficult challenges can be conquered with perseverance, hard work and a positive attitude. In 2010 Norma is planning the 771 Climb for Sight, 7 summits, 7 continents, 1 record. She will climb the 7 highest peaks on 7 continents, including Everest, in 1 year - making her the fastest female to ascend all 7 as well as run a marathon just before the climb.
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VANCOUVER AUDIO FILES
Who are you seeing? The Right Eye Care Right Now
David Maberley, M.D., VGH Eye Care Centre, University of British Columbia
Summary: When living with RP, it’s important to make sure you are seeing the right eye care specialists to get the best possible support and information you deserve. This talk explains who you should be seeing and why. As well, it will give guidelines on what ongoing care and referrals are available to you (i.e. genetic testing, counseling, low vision specialists, research trials). Lastly, an update will be provided on the expansion of the FFB Patient Registry and why it’s important to be a part of it.
LISTEN TO PRESENTATION
Download PowerPoint Presentation
Nutrition and Retinal Degeneration
Ian MacDonald, M.D., University of Alberta, Department of Ophthalmology
Summary: The media and the internet are inundated with reports on nutrition to prevent, slow down and treat various retinal degenerations. While nutritional therapies could benefit some patients, it could also harm others. This talk will separate fact from fiction, in terms of what nutritional therapies will benefit whom.
LISTEN TO PRESENTATION
Download PowerPoint Presentation
- Download Q&A from Dr. Sauve's talk in Toronto.
- For the take home sheet, "Health Eating", please click here.
- Download pamphlet, "Eye on Nutrition"
The Latest Discoveries in Retinal Research
Bob Molday, Ph.D., University of British Columbia; Bill Stell, Ph.D., M.D.,University of Calgary; Ian MacDonald, M.D., University of Alberta, Department of Ophthalmology
Summary: Discoveries in RP research are happening each year, all around the world. This talk will give the latest update on: 1) gene therapy - LCA Phase II results; 2) pharmaceutical therapy (neurotrophic agents) – RP Phase II results; 3) stem cell research outlook; and 4) electronic prosthetic (artificial retina) trial results.
LISTEN TO:
- Gene Therapy Update
- Pharmaceutical and Stem Cell Therapy Update
- Electronic Prosthetic Update
- Latest Discoveries in Retinal Research Q&A's
Download the PowerPoint Presentation by Dr. Molday
Inspiring Keynote Speaker – Heather Challmie
Summary: Heather, who has retinitis pigmentosa, works as a personal chef and is drawing on her love of food and wine pairing to write a book. She also works to raise awareness of RP among the media and public and is a volunteer with Comic Vision, a cross country comedy tour in support of the FFB. Heather is encouraged by the research progress in recent years to find treatments and cures for retinal diseases. She encourages others to have hope and take action.
LISTEN TO PRESENTATION
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