Art is Her Best Friend

Yvonne is living her dream. She is an artist, dedicated to raising awareness and funds for vision research.

Become a Community Fundraiser

Community events are a fun way for you to join the fight against blindness and fund sight saving research. Host a fundraiser in your community today!

Out-pacing vision loss

Cycle for Sight founder and co-chair, Michael Ovens, will cycle any distance or run any length to help support sight-saving research.

Meet Molly Burke, FFB Youth Ambassador

Youth Ambassador

Molly Burke is a youth ambassador for the Foundation Fighting Blindness, educating the public about living with blindness while delivering a message of hope to those living with vision impairment.

Meet Norma Bastidas, mom on a mission

Mom on a Mission

Norma is the second person in history to run 7 of the planet's most unforgiving environments on 7 continents in 1 year in support of vision research. Read her about incredible journey.

Meet Dale Turner, proof that research does work

Miracles do happen

Dale Turner is the first Canadian to receive an experimental treatment and have some sight restored by gene therapy. Dale is proof that investing in research works.

Genetic Testing Resources

Inherited retinal degenerative diseases, like retinitis pigmentosa or Stargardt disease, are caused by one or more mutations in a person's genes. We are now beginning to understand these mutations, and to develop treatments specific to them.

A genetic counsellor is a health professional who can help you understand your eye disease and how it is inherited. By asking you about your family history, they can likely determine the inheritance pattern of your condtion, but with new genetic testing tools, it may be possible for them to give you even more information.

In a few clinics across Canada, it is now possible to be tested to learn the mutation that causes your eye disease. The Canadian Association of Genetic Counsellors offers a listing of the many different types of clinics that do molecular genetic screening at http://cagc-accg.ca (click on Genetic Clinics). Look for clinics that do ocular genetics, general genetics or paediatric genetics - not cancer genetics.

Molecular genetic testing for retinal disease will not be successful in all cases, as many of the genes that cause retinal eye disease have yet to be discovered. However if the mutation that causes your eye disease can be identified, it may provide more information about how your disease will progress and more information about the risk of eye disease for other members of your family. Knowing the gene that causes your eye disease may also be required to be eligible for some types of clinical trials.

For more information about genetic testing see:

 

 

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